Marfan is a disorder that probably all relatively tall people should be aware of, whether it effects them or not. There is a great organization called The National Marfan Foundation (www.marfan.org
) and there website with greater detail, but here is a basic run-down from their site recapping the characteristics of Marfan.
- People with the Marfan syndrome are typically, but not always, very tall or taller than unaffected people in their family, slender and loose jointed.
- More than half of all people with the Marfan syndrome experience dislocation of one or both lenses of the eye.
Heart and blood vessels (cardiovascular system)
- Most people with the Marfan syndrome have problems associated with the heart and blood vessels.
- The brain and spinal cord are surrounded by fluid contained by a membrane called the dura, with age this often weakens and stretches, then begins to weigh on the vertebrae in the lower spine and wear away the bone surrounding the spinal cord.
- Many people with The Marfan syndrome develop stretch marks on their skin, even without any significant weight change or pregnancy.
- Restrictive lung disease, primarily due to pectus abnormalities and/or scoliosis, occurs in 70 percent of persons with MFS.
If you or anyone you know may fall within these conditions, I'd highly encourage checking out the National Marfan Foundation website (NMF) and ask your healthcare provider about it as well.